Tuesday, January 26, 2021

STRUCTURED WATER

A real scientist has been looking into this thing called "structured water" or Ez water. Not for health, but for his own purposes.  In fact years ago some scientists proposed that this existed.  Currently we are aware of three phases of water. 1. Ice, 2. Liquid, 3. Vapor.  But this proposes there is a forth. Between Ice and Liquid there is a gell like substance called "structured or ez" water.

This is liquid water that is has a greater amount of energy or protons than "liquid water".  It is called structured water because it has a honeycomb look to it.  This water is found in nature.... but we are no longer IN nature.

It is found in streams, mineral water, in fresh fruits and vegetables (and I theorize possibly meat). What destroys it? Processing. That is right. Just like you have processed food, you have processed water. 

But wait, nature was smart enough to figure out maybe we might not be able to get the most fresh water all the time so it found a way to take processed water and make it structured. LIGHT. UV light or Infrared light.  Exposing yourself to the sun or other light will cause non structured water to turn into structured water. 

So if you want to be full of this structured water... what would you need to do?

  1. Get a lot of sunlight.
  2. Get a lot of light.
  3. get a lot of fresh food
  4. get a lot of fresh water
  5. Grounding - walking on the earth with bare feet. 
Are you seeing now why we are not healthy? 

Here is the Ted Talk



AMAZING INFORMATION

More and more, as I look into what causes cancer I just continue to come back to one thing: Water and Dehydration.

When we look at the experiments with the Extracellular Matrix, it seems apparent that having a "hard" or stiff ECM, allows the cell inside it to start to break down.  It is the ECM that holds the cell in place and keeps it from proliferating.  In fact, the ECM is only made of a few things... water and collagen being part of it.

Then, there are those that say the same with regard to the cytoplam of the cells. That is is the inner layer of the cell that causes it to turn rogue. 

Lack of water does make some sense in that:

  1. As we age, we lose the ability to concentrate our urine as well, causing more dehydration without us having a clue. And cancer does seem to occur more often with age. 
  2. Water is, H2O, so it has oxygen. It has been suggested for a while that cancer begins due to "hypoxia" at the tissue level. So if we are not getting sufficient water, then we may not be getting sufficient oxygen at some tissues. 
  3. Water assists in circulation which of course, can assist in avoiding hypoxia. 
But still it doesn't totally make sense. More than ever we are hyper aware of our water intake and we drink plenty of water. Go to "You tube" and you will see people drinking a gallon of water a day. IMHO that is way too much. My urine gets clear at about 4 cups of water. No, no, something is wrong with this equation. It is as if the water quality we are getting is not doing its job. Like we are drinking but still dehydrated. 

And then I found it... the water we are currently drinking is not proper water. There is a kind of water out there what will hydrate you better, is better for your cells, and will increase circulation. And this isn't bull this is actually science. 

STRUCTURED water. 

Friday, January 8, 2021

DISASTROUS VISIT WITH NEW HEMATOLOGIST

One year into this thing I can't seem to find a doctor that seems competent or interested in MGUS -- UNTIL - it becomes a raging cancer. Look I get it, there is nothing they can do until it does something, but at the same time I can't help but think it is not outrageous for them to tell me basic info and be on my team.

First point of annoyance: I drove in to a major city to have an "in person" appointment with this doctor. This was an hour drive and I have to pay for parking. But when I went back to the examination room I was informed that the doctor would do 90% of the visit by an iPad from her office. SERIOUSLY?  Of course, they didn't tell me that so they could bill for an in person visit and I wouldn't cancel it. 

Second point of annoyance: the nurse or, whomever, could NOT take my blood pressure. She put the machine cuff on and it was wayyyyy too tight. I told her to take it off. Today, I have bruises.  But then she tried three times on her own and couldn't do it. I suggested that they just use the reading from an office visit I had on 12/24.  She said she couldn't. She tried to get the doctor to do it but I feel the doctor refused.  Eventually she said she got it... what do you think it was... the exact reading from the last time. Which I find hard to believe.  I was fasting on this day and fasting BP is typically lower. She got the idea when I suggested that she take the last reading. Now, that reading is on my record. 

Third point of annoyance: My doctor is just like my cousin who is older bossy and talks like she just got off the boat from New Yawk. It doesn't inspire confidence. 

Fourth point of annoyance: When I told her I was taking turmeric, she goes, oh for what the arthritis? NO YOU MORON.. MGUS!

First point of blinding anger: Her first topic of discussion at my hematology appointment... my colonoscopy.  Ok fine but it didn't end there... she told me my polyps were "pre cancerous" and that I needed to tell my family. Um.. no.. I read the report too and only 2 of 6 were precancerous (and frankly aren't most of them), and it is NONE Of her business what I tell my family. My family hasn't listened to me about anything. Isn't it more important that I tell my brother about MGUS? The actual doctor that did the colonoscopy didn't provide any commentary just the report.  But she is talking about it and my family's health care at MY appointment? 

Second point of blinding anger: Her second topic of discussion was my arthritis in my back. Ok give me a break. That was an interpretation on one X-ray that I had this summer. Which I don't believe. If had had "severe" arthritis in my back don't you think I would be in pain? I have a back condition which may make X-rays hard to read... "scoliosis". So I suspect the person had never seen an X-ray before with that and read it wrong.

Third point of blinding anger: Her political views.  When she made a mistake and mentioned that I need to get a colonoscopy instead of a CT scan, I corrected / clarified with her... that it was a CT scan.  She said, "oh yes sorry I was up late last night watching the horrible events in DC." A reference to the protests that went on in our nations capital. Ok, fine -- everyone gets one.  But then I asked her about the metal detector at work. I have gone through a radiation spewing metal detector for 17 years and I think, now that I have a precancerous condition, maybe I should see if I can avoid that.  When asked... her answer was "after the events of last night I think everyone should go through metal detectors."  HOW DARE SHE??  She is now making my medical decisions based on her political views. OMG!  This also seemed to throw shade on me.  Almost suggesting that I would be a danger. She wouldn't even discuss it with me, rudely cutting me off when I wanted to discuss it more. 

Fourth point of blinding anger: I have been having a sore throat and tender external throat for a few months. At a doctor's visit in 12/24... the doctor who saw me told me to "run it by" this doctor. When I did that this doctor rudely spewed "Why?". I babbled for a moment trying not to say "I don't F** know".  But obviously one of the first symptoms of lymphoma is tenderness in my throat. This idiot told me to get a humidifier (which she actually put in her write up) I have a humidifier... but at this point there was zero point discussing it with her.  

She finally came in for just a second and felt my throat and lymph nodes. But that was it. As her final disgusting F** you... she changed my labs from February to March and decided she wasn't going to see me again for a year. Oh and if you think she will order ANY tests -- that are not the most basic ever -- think again. No to a bone marrow biopsy, no, to any urine tests. Just three of the 12 or so that should be run. 

I was pretty stunned. She was soooo recommended my so many people. But I found her to be the WORST doctor I have ever seen.  I have often believed that doctors sometimes try to get rid of patients by being rude. I believe this was, in part, some of it. As I was leaving the "nurse" mentioned that this lady was scaling down her practice.  Message received. I will be on the search for a new doctor. But before I go, I do believe I am going to turn around and start bothering her. Asking her questions and calling for every little thing that comes up. Two can play at that game.

For the moment I am wondering if it might just be better to stop going to doctors during the MGUS stage and to pay for my tests at the local quest labs.   If the doctor is going to refuse to order anything but blood tests... and pretty much refuse to answer questions with facts and not BS, then I probably should handle my care by myself. 

Tuesday, January 5, 2021

HOW TO FIGHT IT

I am going to fight this thing as much as I can as early as I can. 

Right now, the promising things on my "list" for fighting it include:
  1. Turmeric
  2. IP6 and Intosol.
  3. Keto
  4. Fasting
  5. Weight loss. 
  6. Calorie Restriction.
  7. Vitamin D. 
  8. Hydration. 
  9. Mental Force / belief. 

SYMPTOMS

The medical community says that MGUS doesn't have symptoms - but they are clearly wrong. Many have symptoms and even now, the more enlightened doctors, admit there can be symptoms. Of course this makes some sense. You have an extra protein accumulating in your body: along with extra antibodies and extra free light chains. Your body is a BIG old junk pile. 

The most common symptoms right now are neuropathy. MGUS and Neuropathy.

Other symptoms have included: 

  1. Bone pain.
  2. Eye issues
  3. Renal issues (when more serious called MGRS).
That being said, one of the worst things about MGUS is the constant not knowing if your particular ache or pain is caused by MGUS.  For instance, yesterday I had overwhelming joint pain come over my body. Eventually I worked out it was caused by having sugar and carbs months after stopping them. In fact, I was diagnosed because I had back pain that eventually went away after stopping fasting. Fasting, and the poor water / electrolyte balance I had imho turned out to be the issue.

So a lot of times people write everything to MGUS.. when, if they didn't know the had MGUS, they might not even notice it. 

Don't even think about asking for disability with MGUS. The official line is that it has no symptoms so you won't be able to get disability for that. That is such a shame. Very clearly you can symptoms but will be forced to claim fibromyalgia. 

Monday, January 4, 2021

CAN MGUS GO AWAY?

Many in the MGUS community blithely repeat what their doctor told them about if MGUS can go away or not. They "trust their doctor"... I trust mine, but only so far. This is a new diagnosis and even the best doctors do know everything for sure. I do not blame doctors if they tell little white lies to manipulate patients into doing what is best for them. However, that does not negate the truth. 

I see why they maintain this little white lie. It is quite often the case in blood tests that there are mistakes. Particularly with tests for Mgus that can be subject to "interpretation". So they do not want patients to get a result that says MGUS has gone away and *rely* on that -- and never test again. They also do not want to tell patients the truth... that the blood tests are not perfect. Because later they may need to pretend that they are to get you to pursue treatment. 

But the facts -- via studies -- are that Mgus can be transient.

Out of 8,197 regular blood donors, monoclonal gammopathy was detected in 104 subjects (1.3%). The median age at detection was 53 years, the median monoclonal protein concentration was 0.2 g/dL and the cumulative follow-up of these cases amounted to 763 person/years. In two cases asymptomatic multiple myeloma was diagnosed within 6 months of detection of the gammopathy and in 14 cases, the monoclonal gammopathy was transient. Transient Mgus

After a three-month period of successful treatment with antistaphylococcal agents the analysis of serum immunoelectrophoresis revealed that the monoclonal protein had disappeared. Transient Monoclonal Gammopathy Induced by Disseminated Staphylococcus aureus Infection
Disappearance of the M-protein occurs in approximately 2–5% of patients with MGUS. The majority of these patients have low initial concentrations of M-protein. Disappearance of M-protein is often observed after stopping immunosuppressive treatment or initiation of treatment for other disorders such as autoimmune diseases and infections. The clinical relevance and management of monoclonal gammopathy

So why does this matter? Because saying that MGUS can never go away resigns you not to fight, not to try to get it to go away.  Doctors sort of have their legal hands tied. Their job is not to make you any worse and they must comply with the "standard of care" but that bears no relation to facts.   Is MGUS going away a frequent thing? NO. If mine went away I would insist on testing for years to insure it stayed away. But that does not mean we should lie about reality. 

Saturday, January 2, 2021

HOW DID I GET MGUS

How I came down with MGUS is a subject of much controversy and confusion.

Genetic Causes?: I doubt it. My parents lived into their 80s and neither were diagnosed with any sort of blood cancer. My dad died from Dementia / Heart issues. My mom of stomach cancer -- which I believe was caused by unnecessary PPI drugs.  There is no one in my larger family that had any sort of blood cancer. In fact the vast majority of my dad's family lived to their late 80s - even with diseases like diabetes. 

Environment Causes: I don't know. I work in a court so every day for the last 15 years I have walked into a metal detector at work. But so have 200+ other people. I once helped my brother redo my mom's house but if I was exposed to anything it was probably over a 3 day period over 10 years ago. Recently they did find chemicals in my tap water but I have only lived here 5 years and since I work for about 12 hours a day the vast majority of my water has been taken in via Poland Springs (at work).

Aging: I think this is the most likely situation for me. This came on during menopause. I could see something happening on my blood tests. For over 30 years my WBCs were around 6.0. But in the fall of 2018 I got a test back that said they were at 5.5. Then in the summer of 2019, it was down to 5.2. Finally, in December of 2019 I got a terrible illness and it dropped to 3.4! But recovered to 4.5 in a few months. It now hovers around 4.5 to (occasionally) 6. My immune system has taken a hit. There is controversy about if MGUS causes the immune system to take a hit, but given the way it happened... 2 years of immune system changes followed by MGUS which appears to have just been starting when caught..... I think it was the immune system. 

Sugar and being overweight.  Probably. I am fortunate that I have been dieting since I was 30 years old. So over the 20 years I probably spent 10 years of the 20 not overweight. But since 2014 I have been largely stable and at a max weight.  Though I am also fortunate that I got hip to low carb dieting in the year 2000 and made a lot of cuts.. (I cut out starches and pasta and rice and potato) I still was eating bread which turns out to be quite bad.  The only established thing that can reduce risk of progression is weight reduction. But I have my doubts as I know many people who have progressed at a normal weight. 

PUFAs? Probably.  I was not aware of their danger until this year. I ate massive amounts of spread with Canola Oil. And now I find out that PUFAs can stay in your system for up to four years? Depressing. I have switched to butter and am doing my best to eliminate them and or have Steric Acid. 

The sad truth is that I probably just will never know. My goal now has to be figuring out how to stop it. 

I am finally done with Keto.

Since the start of the pandemic I have been heavily invested in Keto and fasting. What captured my interest was the book, "Anyway you c...